Nyaya yangu - yezvokurapa
Ndine makore makumi manomwe neshanu uye ndiri kunyora izvi ndine tariro yekukurudzira varwere vatsva kuti vatende kuti kuongororwa kunonzwika kunotyisa kunogona kunge kusiri kwakashata sezvavanonzwika. Saka ramba uchiverenga uchipfuura pekutanga.
Zvirwere zvazvino
ABPA uye asthma (yaimbova bronchiectasis, asi izvi zvakanyangarika kubva pakurongwa)
Hombe granular lymphocytic leukemia (inoguma neutropenia uye yakaderera immune immune)
Zvichida imwe mudziyo ischemic chirwere.
uye, munzira,: 2 sinus ops (Polyps uye antroscopies), chisingaperi cystitis uye 2 kurwisa pyelitis - itsvo scan inoratidza bifid ureter, squint (inooneka chete kune opticians, asi ini ndinoshandisa ziso rimwe chete panguva), maviri Cataract ops, uye zvekunzwa - uye vacheche vatatu vane hutano. Majini angu anofanira kunge akati siyanei, asi ndagara ndichipora.
Akazvarwa 1937, nguva yehondo kugoverwa kwemarudzi ese. Vabereki zvakanaka, asi vese vaive neallergies.
Tonsils yakabviswa pazera remakore 5 - ipapo fashoni kune chero mwana we catarrhal, kunyange muhondo! Zvakandiita kuti ndisanyanya kuita zviri nani, uye ndakarovha yakawanda yechikoro chegore rekutanga uye nguva refu nguva yechando yega yega kusvika ndave nemakore angangoita gumi nematatu.
Ini ndinorangarira chete katatu kurwiswa kwakakomba semwana - handina kumboonekwa. Kukosora zvakanyanya muchando chega chega, asi usayeuke chero chinhu chiri kuuya - pamwe vana vanongomedza zvese.
1955: shanda muhofisi, nzvimbo inotyisa, maheater egasi ekare, pasina kufefetera, anenge munhu wese kunze kwangu ini ndinoputa fodya. Ndakanzwa zvakanaka, asi ikozvino ziva kutanga kurwiswa kweABPA kwaiva muna 1956. Mhino yakavharwa zvachose uye sinus; ndakazobvunza chiremba akandipa mapiritsi ewhite asina kutaurwa mazita. Zvino rimwe zuva ndakatanga kuridza mhino dzangu - ndikafuridza nekufuridza- madhaka ebrown anonamira. Zvese zvakacheneswa mukati memaawa mashoma uye ini handina kuzofunga nezvazvo - kusvika makore gare gare.
1962: Takaenda kunoshanda kuNigeria (kudzidzisa). Yakavakirwa mutaundi diki, zvinonyanya kukosha zvinowanikwapo nechero Western standard; – parafini firiji, calor gasi cooker nemarambi emafuta, mvura yemupombi haigare iripo. 'Chipatara' chemunharaunda ingori kiriniki - midziyo mishoma uye chiremba mumwe chete anobata nzvimbo yakakura kwazvo. Mamiriro ekunze: Mwedzi mitanhatu kupisa zvakanyanya, kunyorova, uye kunyorova, mwedzi mitanhatu yakaoma zvakanyanya uye ine huruva - inotonhorera usiku uye inopisa zvakanyanya (6Fplus) masikati. 6 uye 100: kuberekwa kwevanakomana vaviri - vose zvakanaka uye vanoyamwisa kwemwedzi gumi nemiviri mumwe nomumwe. Nyika yakanaka, vanhu vakanaka, vachitigamuchira sevadzidzisi vavaida. Zvese zvinonzwika zvisingaite.
Asi Rusununguko rwakanga rwatungamira kuhurumende isina mhirizhonga, iyo yakapinda mumhirizhonga - mhirizhonga yehurumende, mhirizhonga mumisha yakatenderedza, uye gare gare hondo yevagari veBiafra - zvinhu zvehusiku. Akaudzwa kuti abve pamba, uye akaiswa mumba umo imba yake yokurara yakanga ine mitswe mikuru mumapuranga euriri uye kunhuwa kusinganzwisisike. Takanga takarara pamusoro pechimwe chitoro chekare chizere nezviremwaremwa zvakawanda nendove yavo yainge yaungana!!
Mauto eBiafra akabva panzvimbo yedu, takadzokera kumba nekuchikoro.. Gumiguru 1967, mwana wechipiri ane mwedzi mipfumbamwe akaita tsikidzi mudumbu - basa rakanaka ndakanga ndichiri kuyamwisa. Ndakaneta, ndikaita chikosoro – icho chakaramba chichiwedzera, uye zvakanyanya……Handina kuziva kuti ndairwara sei kunyangwe ndakakurumidza kukosora pasina kumira kweawa imwe kana maviri panguva, asi hapana chakabuda. Hapana x-ray kana kuongororwa ropa kunowanikwa munharaunda; Dr vakandipa mapiritsi easthma – haana kubatsira zvakanyanya.
Jan 1968: Ndakadzokera kuUK kwaitonhora zvikuru uko ndakakurumidza kubata fivha; x-ray yaiita kunge mabayo - kana TB - kana gomarara…. Muchipatara chiremba wechipfuva akangwara akaita bronchospy (nebronchoscope yepakutanga yakaoma!), akakochekera muck yebrown - uye akafara apo lab yakaonekwa kuti aspergillosis. Kurapa: kurara munzvimbo yePD (musoro wakaderera kupfuura muviri) uye 15mg (ndinofunga) zuva nezuva steroids. Zvakare dhayi yegirinhi yekupfapfaidzwa pahuro pangu nepfapfaidzo yemunhuhwi!!
Pane chimwe chinhu chakashanda - mushure memavhiki manomwe emaawa asina maturo ekukosora pamubhedha wangu wakasimudzwa, ndakatanga kukosora mapulagi anonamira ebrown - tambo refu, beaker rakazara masikati pandakanga ndiri ndega pamba ndisina foni. Pakupedzisira ndakakwanisa kufema. Consultant kugadzwa kwakakodzera mumazuva akati wandei - pasina kana chinhu chakafambiswa panguva iyoyo ndingadai ndakatumirwa kuOxford kunobviswa mapapu, zvino zvisingaite. Ndakanga ndiri mudiki (7) uye ndakakurumidza kunaya kuupenyu hwemazuva ose.
Consultant akandinyevera kuti Aspergillosis yaizodzoka, kunyanya muupenyu hwapashure, asi ndakanzwa zvakanaka, takagadzikana, takatenga imba ndokuva nomwana wechitatu.
Iyo yakasara yenyaya ichave yakajairika kune vazhinji vaive neABPA kare kare. Chiremba uye ane chinangwa chakanaka GP akanga asina ruzivo rweAspergillosis, kana vanachiremba vaduku vechipatara. Ndine chikwereti chikuru kune mubatsiri akazviongorora, asi handina kusvika kumuona kakawanda. Ndakabata vana vedu vese dzihwa, ndokukosora nekukosora. GP vakandipa mishonga inorwisa mabhakitiriya pakurwiswa kwese, asi hapana mumwe wedu akaziva kuti pamwe ndaiva neABPA flare-ups, saka handina kuwana masteroid. Ndinofunga kuti kudzidziswa kwevanachiremba mumakore ekuma60 ne70 kwakayambira pamusoro pekunyorerwa zvakanyanya kwesteroids, kwakadzidzisawo kuti kusimbisa murwere kwakakosha - asi chokwadi kusimbiswa kwaisabatsira kana asina chaaiziva nezveABPA. Akanga achizengurira kundipa steroids kunyange pandakafunga kuti ndakanga ndine moto; mukurwisa kwakaipisisa, munyori wepachipatara haana kuwana chero chiratidzo pax-ray yangu, akanditi 'hutsotsi' uye akandipa bhodhoro hombe recodeine linctus yekukosora kwangu! Pachiitiko ichocho, ndakazopedzisira ndawana ma steroid nekuita bopoto, zvino mushure memazuva gumi kukosora kusina maturo, ndakapedza imwe manheru ndichikosora pasina kumira ndisati ndaburitsa plug hombe (nekurwadziwa kwakanyanya), ichiteverwa nehuwandu hwakawanda hwefungal. Ndinofanira kunge ndakatsemura tsinga uye kukosora ropa zuva rose rakatevera, pamwe chete nekurwadziwa zvakanyanya. Murume wangu akazonyengerera Chiremba weChiremba kuti ndaida chipatara - kwavakavheneka zvinhu zvakasiyana-siyana zvakaita sechikosoro! Pamasvondo matanhatu chete kutarisa-up uko munyori akandiudza zviri pachena - yanga iri ABPA! Muedzo wakanaka pane imwe diki yandakanga ndakosora pakutanga yakanga yakanganiswa!
Kwakadaro kwaiva kurapwa nevane vavariro dzakanaka uye vanachiremba vakanaka vasati vaziva chero chinhu pamusoro peABPA, uye vakanga vasina chakanyorwa kuti vataure (kana ini handina).
Saizvozvowo, fungus mu sinus yangu haina kuonekwa pakarepo, asi ndakazopedzisira ndaendeswa kune chiremba akanaka ENT, uyo akabvisa mapepa emhino uye akazarura sinus - kubvisa matambudziko ose e sinus zvakanaka.
Vechidiki, hutano hwakanaka nemararamiro zvakaita kuti ndirambe ndichienderera mberi (kunyangwe ndaigara ndakaneta) kusvikira ndakumbira imwe pfungwa uye ndakaendeswa kuBrompton muna 1990. Izvi zvakashandura hupenyu hwangu neimwe nzira. Kuongorora pakushanya kwekutanga kwakaratidza bronchiectasis, uye mapulagi akatenderedza mapapu angu. Ndakadzidziswa physio - kufema, uye kuhuffing - kuiswa masteroid zvachose, uye kupfuura zvose, rondedzero yakadzoserwa kuna Chiremba wangu yakaratidza kuti ndakanga ndisati ndave nehurwere hwehutsinye kana kufungidzira; Ndakazonzwisiswa, uye ndaigona kuwana kurapwa kwakakodzera pandaida. Pazuva nezuva prednisolone, matsutso epagore nematsutso anopisa zvakanyanya zvakanyangarika, asi kutonhora kwega kwega kwaikonzera kupisa kwakanyanya.
1995: Hutachiona hutatu hunotevedzana. In-murwere paBrompton - ciproxin uye 3mg prednisolone, yakaramba iri pamba kwemavhiki akawanda. Ndakapera simba zvokuti ndaisakwanisa kukwira masitepisi kana kufamba ndakananga; yakadzvanya maAchilles tendons (nguva dzose chengetedza kana uri pa ciproxin yakasanganiswa nepamusoro dose steroids); shamwari yangu yakaenda neni pawiricheya; Ndaifunga nezveramangwana rangu.
1996: Pakupedzisira ndakanga ndava nani, ndava kukwanisa kufamba zvakare, uye kurara zviri nani. Kugadzwa nguva nenguva kuBrompton; registrar akabvunza nezve hutano hwakazara uye ini ndakashuma tsikidzi yemudumbu yakanga yatora nguva yakareba kuchena; kuongororwa ropa nekukurumidza. Akafona mangwanani anotevera - usazvinetse asi…
Superb haematologist pachipatara chemuno akaita ongororo dzakawanda - akawana leukemia isingawanzo (ona kumusoro), iyo, akati, yakasanganiswa neiyo ABPA isingawanzowanikwi, inofanira kunge yakasarudzika - asi ndainzwa zvakanaka! Hurukuro refu pamusoro pekugona kurapwa - zvese zvakamiswa sekunzwa kwandaiita.
Kubva ipapo ndinofanira kutora chero hutachiona hwefivha zvakanyanya, ndopinda muchipatara kunotora mishonga inorwisa mabhakitiriya kana fivha yakakwira (kazhinji hutachiona hunenge huri mumapapu, kana mumaronda muganda rangu rakatetepa). ABPA haina kunyanyisa, asi pandakakura, ndakaona kukosora kuchishungurudza. Ndakatozotama kubva kuBrompton kudzokera kuSwindon muna 2000. Ndakazowana itraconazole muna 2010 kubva kuMutariri wechidiki aifarira zvikuru muchipatara cheko. Izvi zvaita mutsauko mukuru - ndichiri kukosora, asi kwete zvechisimba kana zviperengo zvenguva refu.
Ndakanzvenga mhomho uye zvifambiso zvevoruzhinji munguva yechando kubvira pahurwere hwa1995, uye zvinoshamisa pamakore makumi manomwe nemashanu, ndava nehupenyu hwakanaka. Ini ndinoneta uye ndinozununguka, uye ndinofanira kuzvifambisa zuva nezuva uye vhiki nevhiki. Ganda harina kusimba, bvudzi rave kutetepa, izwi rinowanzoita gomarara uye kurara kazhinji kwakashata. Asi ndinogona kufamba mamaira mana kana zvakadaro pazuva rakanaka, kukwira zvikomo zvedu zvese (zvishoma nezvishoma) uye kazhinji ndinonakidzwa nehupenyu. Angina inogona kunetsa, asi ndakaramba angiogram, ndichitya kuti tsinga inogona kubaiwa, kana kutapukirwa nehutachiona. Ndine rombo rakanaka kuti ndichiri nemurume wangu anonditsigira uye kunakidzwa nezvinhu zviri nyore - hatisati taenda kunze kwenyika kubva pakudzoka kubva kuNigeria; mazororo chaiwo emunharaunda anogona kungonakidzawo.
Kune chero anofarira chokwadi uye manhamba:
IgE pakupedzisira kuverenga: 11,000. RAST kune aspergillosis 4. Neutrophils (masero machena eropa anonyanya kukanganiswa ne leukemia) anosiyana - akaderera se 0.3 makore mashoma apfuura, uye zvino akapoteredza 1.0 (ndinofunga kuti 2.5 ndeyemazuva ose).
Chii chaindirwarisa? - Kupisa kwemamiriro ekunze? kunetseka kwoupenyu kwakapoteredzwa nechisimba uye hondo yevagari vemo? madonhwe echiremwaremwa? - Ndinofungidzira ini ndakafanorongerwa genetically kuti ndiwane ABPA, asi ini zvakare ndine 'akanaka' majini kubva kuna amai vakararama kwenguva refu. Ko leukemia yakabva mumascan ese nemax-rays andakaitwa? Kana kuti mugumisiro wokushushikana kwechirwere cha1995? Handichaziva. Varwere vatsva vazvino vanogona kutenda kuti aenda mazuva ekunhuhwirira-pfapfaidzo izere nedhayi yakasvibira, max-ray asina basa, uye vanachiremba vasina internet. Nyika yashanduka uye ndinotenda zvikuru netsvakiridzo yese inoita kuti ndirambe ndichienderera mberi, uye kune vazhinji vashandi veNHS nekuchengeta kwavo kwese.
Ndakadzidzei?
Kushungurudzika hakudzivisiki - dzivisa kana uchikwanisa, kana kuziva uye edza kugadzirisa.
Tora zviratidzo zvekutyisidzira zvakanyanya, asi usavhunduka. Gara uchitora mushonga waunenge wapihwa - kunze kwekunge chikonzero chakanaka chekusadaro - wozoudza chiremba wako.
Dzivisa zvimwe zvirwere zvose kana uchikwanisa.
Ramba kure nekuvapo kukuru kwekunyorova uye kuumbwa, (semurwi wecompost) asi usazvinetse pamusoro pezvisinganzwisisike.
Itai shamwari yaChiremba wenyu – anogona kukubatsirai kunzwisisa matambudziko enyu nekuita sarudzo dzakakosha.
Idya kudya kunovaka muviri – michero nemiriwo yakawanda, (handina chandanzvenga chikafu).
Pandinorwara, ndinodzivirira kuora mwoyo nekuronga chimwe chiitiko chinobatsira zuva rega rega, zvisinei zvishoma, uye nekukurumidza sezvinobvira, kufamba - kusvika paimba inotevera, kana kuguma kweKuvhara, kana kusvika pandinogona, ndichiita zvishoma zuva rimwe nerimwe.
Uye zvishuwo zvakanaka kune vese vanotambura - ndasvika pakufara makumi manomwe neshanu mushure mezvose izvo - pamwe newewo uchadaro.