The 23rd-27th of September is Fungal Disease Awareness Week, a week dedicated to raising awareness of fungal diseases around the world. Patients with fungal diseases can often experience delays in diagnosis and treatment due to the limited knowledge of these illnesses among both clinicians and the general public. Many aspergillosis patients will be familiar with this problem!
The aim of Fungal Disease Awareness Week is to encourage patients and healthcare providers around the world to ‘Think Fungus’. when the symptoms of infection do not get better with treatment.
Share the video below with family and friends to encourage them to #ThinkFungus
September is Pain Awareness Month in the USA, a month dedicated to raising awareness of the issues surrounding pain and pain management. Chronic pain can be a major problem for aspergillosis patients (though speak to your doctor if the pain is extreme or worsening), and can interfere with you living a full and active life. Often it is difficult to explain hidden symptoms such as pain to doctors, friends and family, which can be frustrating and a barrier to accessing the care you need. The American Chronic Pain Association have therefore put together several resources for both patients and their healthcare professionals, in order to ensure that anyone living with chronic pain can access support for managing and living with pain.
Every Thursday at 11am (UK time), we hold an online video call meeting open to all aspergillosis patients and carers. This means that you can meet others in the aspergillosis community, even if you live too far to travel to local meetings. The group is very friendly and open, and you are free to chat about anything!
To come along and chat with this friendly group of Aspergillus veterans:
Go to https://zoom.us/meeting/register/uJwkdeuupzIoYvkMpv-N3aMQtDQwEYLXIg and follow the instructions – Google Chrome browser works well. You can also dial in by phone using a local number in dozens of countries – to do this click on the link above and then ‘Join audio’ (bottom left) – you can choose from a long list of phone numbers’
Travelling through airports with an invisible illness can be difficult, as it may not be obvious to others that you need extra time or assistance. The experience can be stressful and anxious for some, and it may be hard to explain your hidden symptoms. This is why several airports in the UK have implemented a scheme, so that those with invisible illnesses can order a sunflower lanyard to wear through the airport. These lanyards make the wearer more visible so that they can travel independently, but access help quickly if needed. Some supermarkets are also trialing this scheme.
The Aspergillosis Trust and its supporters have organised several events and ongoing fundraisers to raise money for the Fungal Infection Trust (FIT). Click on the link below to donate money, keep up to date with fundraising events or even think about organising your own!