In order to make our research as strong as possible we want to involve any doctor in the US who is involved with the diagnosis and treatment of aspergillosis. Patients and carers can help us by passing on our details in an email to all of your doctors, including a link to a survey asking for their contact details. The more we get the better!
Please copy & paste the following to your clinical team – more than one if you have them, specialist or general doctor.
Dear [Your doctors name]
The National Aspergillosis Centre (NAC) in Manchester UK is one of the foremost research centres in the world studying all forms of chronic aspergillosis (eg CPA, ABPA, SAFS, Aspergillus bronchitis, aspergilloma) and was the first centre recognised by the European Confederation of Medical Mycology (ECMM) and a Centre of Excellence.
Run by Director Professor David Denning, we would like to be able to contact clinicians in the US who are involved in diagnosing and treating aspergillosis, so that we can help involve you in our research programs. Only by working together can we improve diagnostics and antifungal medication for this chronic infection.
The Irish Lung Fibrosis Association has produced an hour-long video, which takes viewers through yoga exercises suitable for patients with lung fibrosis and other respiratory conditions. Exercise is key to a healthy lifestyle, and can improve quality of life in those who suffer from lung conditions. If you struggle to stand, the first half of the video is devoted to exercises that can be done sitting in a chair.
Further information about exercising with aspergillosis:
A recent article published in the Daily Mail includes an interview with 2 aspergillosis patients, both founders of the Aspergillosis Trust. The piece covers the debilitating symptoms that fungal infections can cause and highlights the growing problem of antifungal resistance throughout the world. The Daily Mail article was followed by a piece in The Times, covering many of the same issues. Articles about aspergillosis being published in such major newspapers represents a significant step in the fight to raise awareness amongst the public about such a rare and little-known disease.
A new study from the Netherlands has challenged the widely held opinion that airborne transmission of Aspergillus fumigatus between patients with cystic fibrosis (CF) does not occur.
Chronic Pulmonary Aspergillosis (CPA) is a chronic condition affecting patients with structural lung damage such as that caused by CF. It is generally accepted that patients become colonised by A. fumigatus following the inhalation of spores from the environment.
Mental health amongst university students could be improved by introducing mindfulness training. These are the findings from the first UK study, published in Education Research International, to measure the efficacy of mindfulness based cognitive therapy (MBCT)on students.