A recent article published in the Daily Mail includes an interview with 2 aspergillosis patients, both founders of the Aspergillosis Trust. The piece covers the debilitating symptoms that fungal infections can cause and highlights the growing problem of antifungal resistance throughout the world. The Daily Mail article was followed by a piece in The Times, covering many of the same issues. Articles about aspergillosis being published in such major newspapers represents a significant step in the fight to raise awareness amongst the public about such a rare and little-known disease.
A new study from the Netherlands has challenged the widely held opinion that airborne transmission of Aspergillus fumigatus between patients with cystic fibrosis (CF) does not occur.
Chronic Pulmonary Aspergillosis (CPA) is a chronic condition affecting patients with structural lung damage such as that caused by CF. It is generally accepted that patients become colonised by A. fumigatus following the inhalation of spores from the environment.
Mental health amongst university students could be improved by introducing mindfulness training. These are the findings from the first UK study, published in Education Research International, to measure the efficacy of mindfulness based cognitive therapy (MBCT)on students.
Stories from other patients form an important part of patient support. Many people report that listening to or reading about someone else who has the same infection, and thinking about their experiences, helps them feel less alone as they come to terms with their own illness.
Carers are not forgotten, they are a very important group who also require support – in fact if we only supported patients we would be neglecting half of the people we need to help. Two of the videos below are given by carers.
On the 26th of March there will be a charity coffee morning held at Dudley Golf Club, in aid of The Aspergillosis Trust. Open to everyone, this event will include stalls selling a variety of goods, including handmade greetings cards, a raffle, and of course, refreshments! Further details can be seen on the poster below: