CPAnet has set out to improve patient care across Europe by becoming a central meeting point and resource centre for the study of Chronic Pulmonary Aspergillosis (CPA), a seriously debilitating lung infection that remains:
- difficult to diagnose (so there are probably many undiagnosed cases out there that are not getting the best treatment)
- difficult to treat (antifungal drugs are not an easy to use, there is a limited supply of different antifungal drug classes)
- difficult to have! Patients are managed over a long time but often experience multiple debilitating side effects as a result of taking antifungal medication, and multiple unpleasant symptoms caused by this long term infection.
CPAnet aims to accelerate better diagnosis and treatment by pooling resources, updating and upgrading standards and coordinating research so we all learn the maximum possible out of each study.
However, in order to achieve these ambitions, CPAnet needs your help. If you are a patient with CPA anywhere in Europe and you feel that you could tell us your story, describe your patient journey and tell us where the current system in your country could change for the better, then please get in touch. We can meet up online, you don’t need to travel and you will get lots of support to help you as you help us.
We are fully aware that people with CPA often feel too ill to participate, so you do not have to attend any particular meeting online, we will work around your limitations of time & energy.
To express interest in joining our fight against CPA, use the form below. You may withdraw at any time.